HIV/AIDS
has been a well-recognized pandemic throughout the world for nearly
over the past two decades. Despite several efforts to address
the problem, the trend of HIV spread is still unbroken and it
is more apparent in poor resource setting countries such as Nepal.
As of January 2004, the Ministry of Health (MoH) has reported
708 cases of AIDS and 3,388 cases of HIV infections in Nepal.
Given the poor existing medical and public health infrastructure
and the lack of continuity in national HIV/AIDS surveillance systems,
it is very likely that the actual number of cases can be many
times higher. UNAIDS has estimated that about 60,000 people are
living with HIV/AIDS in Nepal.
The Far Western Region
of Nepal is considered by many to have one of Asia’s fastest
growing AIDS epidemics. The high migration rate (at least one
male member from 80-90% of the household) in Far-Western Region
has contributed for the rapid spread of HIV/AIDS. About 10% of
the migrants returning from Mumbai, India have been tested HIV
positive. Many of them may be engaged in unsafe sexual practices.
The socio cultural norms and practices, the high level of stigma
and discriminations prevent these people and others in the high-risk
groups from being open, practice safer sex, seek medical attention
and undergo testing.
Given the context,
CARE Nepal worked in two remote districts (i.e. Doti and Bajhang)
in the Far Western Region of Nepal, from February 2002 to 2004,
with funding support from FHI. The objective of the program was
to reduce STI/HIV related high-risk behavior among migrants and
other vulnerable population. CARE Nepal’s work in these
two districts during the last two years has strengthened the institutional
capacity of the local NGOs and created higher level of awareness
on the STI/HIV among the migrant men, their wives and young population.
The program was directed towards creating greater awareness and
promoting the use of condom, but the project neither investigated
stigma and discrimination nor included components of working with/and
or support mechanism for People Living With and Affected by HIV/AIDS
(PLWHA).
Background
One of the most difficult challenges for People Living with HIV/AIDS
(PLWHA) is to face negative responses towards them by people in
their social environment. These responses may range from unconscious
gestures, to rejection and mistreatment tinged with harassment
and hostility. Negative attitudes and behaviors related to HIV/AIDS
that are based on unfound ideas and fears constitute stigma and
discrimination (S&D). The S&D often have a profound impact
on the lives of PLWHA.
The S&D are one
of the most important barriers to fighting the AIDS epidemic.
They result in individuals denying they are HIV-positive, shying
away from preventive behaviors and being inhibited in seeking
medical treatment out of fear that their health status will be
discovered. Sufferers attempting to receive medical treatment
may also experience a lack of commitment and mistreatment by health
professionals. In addition, stigma and discrimination may cause
infected people to lose social and economic support from their
families. Fear of being identified as positive and discriminated
against discourage individuals from seeking voluntary testing
of their HIV status, thus affecting prevention and surveillance
efforts.
In Nepal, S&D
stem from beliefs that HIV/AIDS is a fatal disease readily transmitted
in causal or indirect contact with a person with infection. In
addition, the social and intimate nature of its transmission and
the emphasis on its spread through sex work and drug abuse have
created stereotypes of PLWHAs and the mistaken image that only
immoral people are infected. In order to address inaccurate and
damaging attitudes towards PLWHA, it is important to identify
the nature of the cultural beliefs and practices that underline
them. This study will identify the sources and circumstances of
S&D for PLWHA in Nepal.
The study will examine S&D from both the perspectives of PLWHA,
community people, and service provider in a holistic manner. It
also examines the current practice and the capacity/skill development
needs of the service providers. With this information, programs
may be planned to reduce stigma and discrimination and support
PLWHA. This will help to promote Greater Involvement of People
living with HIV/AIDS (GIPA) in HIV/AIDS prevention program.
The
project
This project is designed to better understand the extent of S&D
faced by PLWHAs and to explore different support mechanisms create
more enabling environment for PLWHAs to lead a dignified life
in their society. It also examines the current practice and the
capacity/skill development needs of the service providers.
The pilot project
has been launched in four Village Development Committees (VDCs)
of Doti district. The project was started on April 2004 and will
be completed on September 2004.
Overall
objective
The general objective of the study is to promote greater involvement
of people living with HIV/AIDS in HIV/AIDS prevention program
through deeper understanding of the stigma and discrimination
faced by PLWHA. The study aims to document the current situation
of PLWHA, their livelihoods strategies, as well as identify capacity/skill
development needs of service providers.
Specific
objectives
· Identifying and understanding the situation of PLWHAs
and their livelihoods/coping strategy
· Identifying the current practices and training needs
of health workers related to HIV/AIDS
· Enhancing capacity of health workers and community people
on HIV/AIDS
· Promote community mobilization to reduce stigma and discrimination
on HIV/AIDS patients |